Precocidad en la solidaridad familiar intergeneracional: un estudio exploratorio sobre el fenómeno de los jóvenes cuidadores en España
Resumen
Habitualmente, los progenitores cuidan de sus hijos hasta que estos se convierten en adultos independientes, y, de manera similar, los hijos cuidan de sus progenitores en su vejez. Sin embargo, este orden socialmente aceptado puede invertirse cuando los progenitores padecen una enfermedad crónica mientras sus hijos aún son jóvenes. Este artículo analiza las experiencias vividas por jóvenes cuidadores y cómo les afecta la enfermedad de un miembro de la familia. Para ello se emplea la teoría de la solidaridad familiar intergeneracional (SFI) y se utilizan datos cualitativos obtenidos mediante entrevistas en profundidad semiestructuradas con jóvenes cuidadores residentes en España (N = 8).
El artículo revela que la enfermedad de un miembro de la familia refuerza la solidaridad familiar intergeneracional y la unidad familiar, implica un proceso de aprendizaje, provoca angustia psicológica y crea una necesidad de apoyo emocional. Además, el estudio identifica algunas diferencias menores en función del sexo de los jóvenes cuidadores.
Las principales aportaciones de este artículo son dos. En primer lugar, contribuye a la literatura internacional sobre los jóvenes cuidadores utilizando la perspectiva teórica elaborada por Bengtson y Roberts en 1991, que se aplica comúnmente a la relación entre hijos adultos y padres ancianos o entre abuelos y nietos. En segundo lugar, el artículo aporta nuevas consideraciones empíricas para la investigación y el reconocimiento social de los jóvenes cuidadores, particularmente en España, donde la familia constituye un pilar fundamental de la protección social, la literatura sobre este fenómeno es escasa y la concienciación social es limitada.
Palabras clave
joven cuidador, métodos cualitativos, solidaridad familiar intergeneracional, EspañaCitas
Addo, Isaac Yeboah; Aguilar, Sienna; Judd-Lam, Sara; Hofstaetter, Lukas and Cheong Poon, Abner Weng (2021). Young Carers in Australia: Understanding Experiences of Caring and Support-Seeking Behaviour. Australian Social Work, 1-14. https://doi.org/10.1080/0312407X.2021.1971271
Aeyelts, René; Marshall, Sheila; Charles, Grant and Young, Richard (2016). How Care is Negotiated Between a Young Carer and a Parent Experiencing Mental Illness and Addiction. International Journal of Child, Youth and Family Studies, 7(1), 65-80. https://doi.org/10.18357/ijcyfs.71201615417
Aldridge, Jo and Becker, Saul (1993). Children Who Care: Inside the World of Young Carers, Loughborough University of Technology, Department of Social Sciences.
Amato, Paul R. and Booth, Alan (1997). A Generation at Risk: Growing Up in an Era of Family Upheaval, Cambridge, MA and London, England: Harvard University Press. https://doi.org/10.4159/9780674020191
Anderson, Claire (2010). Presenting and Evaluating Qualitative Research. American Journal of Pharmaceutical Education, 74(8), 141. https://doi.org/10.5688/aj7408141
Areguy, Fitsum; Mock, Steven E.; Breen, Andrea; Van Rhijn, Tricia; Wilson, Kimberley and Lero, Donna S. (2019). Communal Orientation, Benefit-Finding, and Coping Among Young Carers. Child & Youth Services, 40(4), 363-382. https://doi.org/10.1080/0145935X.2019.1614906
Bengtson, Vern L. and Roberts, Robert E.L. (1991). Intergenerational Solidarity in Aging Families: An Example of Formal Theory Construction. Journal of Marriage and Family, 53(4), 856-870. https://doi.org/10.2307/352993
Bengtson, Vern; Giarrusso, Roseann; Mabry, J. Beth and Silverstein, Merril (2002). Solidarity, Conflict, and Ambivalence: Complementary or Competing Perspectives on Intergenerational Relationships? Journal of Marriage and Family, 64(3), 568–576. https://www.jstor.org/stable/3599924
Bengtson, Vern L. (2001). Beyond the Nuclear Family: The Increasing Importance of Multigenerational Bonds. Journal of Marriage and Family, 63, 1-16. https://doi.org/10.1111/j.1741-3737.2001.00001.x
Bengtson, Vern L.; Hayward, R. David; Zuckerman, Phil and Silverstein, Merril (2018). Bringing Up Nones: Intergenerational Influences and Cohort Trends. Journal for the Scientific Study of Religion, 57, 258-275. https://doi.org/10.1111/jssr.12511
Boyle, Geraldine (2020). The Moral Resilience of Young People Who Care. Ethics and Social Welfare, 14(3), 266-281. https://doi.org/10.1080/17496535.2020.1771606
Bradbury‐Jones, Caroline (2007). Enhancing Rigour in Qualitative Health Research: Exploring Subjectivity through Peshkin’s I’s. Journal of Advanced Nursing, 59(3), 290-298. https://doi.org/10.1111/j.1365-2648.2007.04306.x
Braun, Virginia and Victoria Clarke (2006). Using Thematic Analysis in Psychology. Qualitative Research in Psychology, 3(2), 77-101. https://doi.org/10.1191/1478088706qp063oa
Braun, Virginia and Clarke, Victoria (2012). Thematic Analysis. In: H. Cooper, P. M. Camic, D. L. Long, A. T. Panter, D. Rindskopf, and K. J. Sher (Eds.), APA Handbook of Research Methods in Psychology. Research Designs: Quantitative, Qualitative, Neuropsychological, and Biological, 2, 57-71. American Psychological Association. https://doi.org/10.1037/13620-004
Caïs, Jordi and Folguera Cots, Laia (2013). Redefining the Dynamics of Intergenerational Family Solidarity in Spain. European Societies, 15(4), 557-576. https://doi.org/10.1080/14616696.2013.836404
Cass, Bettina; Smith, Clara; Hill, Trish; Blaxland, Megan and Hamilton, Myra (2009). Young Carers in Australia: Understanding the Advantages and Disadvantages of their Caregiving. FaHCSIA Social Policy Research Paper (38). https://doi.org/10.2139/ssrn.1703262
Cavallotti, Rita and Marcaletti, Francesco (2018). Older Parents, Generations and Family Solidarity. A Multilevel Analysis of the Spanish Context. UIC Barcelona. Institute for Advanced Family Studies. https://www.uic.es/sites/default/files/2021-12/IESF_cIsFamily_Informe_EN.pdf
Chan, Christine. M. (2012). Health-Related Quality of Life of Preschool Caregivers in Hong Kong. Health Promotion International, 29(2), 287-295. https://doi.org/10.1093/heapro/das058
Clarke, Victoria; Braun, Virginia and Hayfield, Nikki (2015). Thematic Analysis. Qualitative Psychology: A Practical Guide to Research Methods, 222, 248.
Cooney, Teresa and Dykstra, Pearl (2011). Family Obligations and Support Behaviour: A United States–Netherlands Comparison. Ageing & Society, 31(6), 1026-1050. https://doi:10.1017/S0144686X10001339
De Roos, Simone A.; De Boer, Alice H. and Bot, Sander M. (2017). Well-Being and Need for Support of Adolescents with a Chronically Ill Family Member. Journal of Child and Family Studies, 26(2), 405-415. https://doi.org/10.1007/s10826-016-0574-7
Dellmann-Jenkins, Mary and Brittain, Lisa (2003). Young Adults’ Attitudes Toward Filial Responsibility and Actual Assistance to Elderly Family Members. Journal of Applied Gerontology, 22(2), 214-229. https://doi.org/10.1177/0733464803022002003
Dellmann‐Jenkins, Mary; Blankemeyer, Maureen and Pinkard, Odessa (2000). Young Adult Children and Grandchildren in Primary Caregiver Roles to Older Relatives and Their Service Needs. Family Relations, 49(2), 177-186. https://doi.org/10.1111/j.1741-3729.2000.00177.x
Dondanville, Danielle S.; Hanson-Kahn, Andrea K.; Kavanaugh, Melinda S.; Siskind, Carly E. and Fanos, Joanna H. (2019). “This Could Be Me”: Exploring the Impact of Genetic Risk for Huntington’s Disease on Young Caregivers. Journal of Community Genetics, 10(2), 291-302. https://doi.org/10.1007/s12687-018-0395-z
Duflos, Mathilde and Giraudeau, Christophe (2021). Using the Intergenerational Solidarity Framework to Understand the Grandparent-Grandchild Relationship: A Scoping Review. European Journal of Ageing, 19(2), 233-262. https://doi.org: 10.1007/s10433-021-00626-6
Eley, Susan (2004). “If They Don’t Recognize It, You’ve Got to Deal with It Yourself”: Gender, Young Caring and Educational Support. Gender and Education, 16(1), 65-75. https://doi.org/10.1080/0954025032000170345
Eurocarers (2019). Policy Paper on Young Carers. https://eurocarers.org/publications/eurocarers-policy-paper-on-young-carers
Fruhauf, Christine A.; Jarrott, Shannon E. and Allen, Katherine R. (2006). Grandchildren’s Perceptions of Caring for Grandparents. Journal of Family Issues, 27(7), 887-911. https://doi.org/10.1177/0192513X05286019
Gedvilaitė-Kordušienė, Miglė (2015). Does Adult Children Migration Lower the Level of Intergenerational Solidarity? Evidence from Lithuanian Transnational Families. Polish Sociological Review, 189, 47-68.
Gill, Patricia; Stewart, Karen; Treasure, Elizabeth and Chadwick, Brian (2008). Methods of Data Collection in Qualitative Research: Interviews and Focus Groups. British Dental Journal, 204(6), 291-295. https://doi.org/10.1038/bdj.2008.192
Giarrusso, Rossean; Feng, Du; Silverstain, Merril and Bengston, Vern L. (2001). Grandparent-Adult Grandchild Affection and Consensus: Cross-Generational and Cross-Ethnic Comparisons. Journal of Family Issues, 22(4), 456-477. https://doi.org/10.1177/019251301022004004
Guest, Greg; MacQueen, Kathleen M. and Namey, Emily E. (2012). Applied Thematic Analysis. SAGE. https://doi.org/10.4135/9781483384436
Hamill, Sharon Boland (2012). Caring for Grandparents with Alzheimer’s Disease: Help from the “Forgotten” Generation. Journal of Family Issues, 33(9), 1195-1217. https://doi.org/10.1177/0192513X12444858
Hamilton, Myra and Cass, Bettina (2017). Capturing the Centrality of Age and Life-Course Stage in the Provision of Unpaid Care. Journal of Sociology, 53(1), 79-93. https://doi.org/10.1177/1440783315625117
Hank, Karsten and Steinbach, Anja (2018). Intergenerational Solidarity and Intragenerational Relations Between Adult Siblings. Social Science Research, 76, 55-64. https://doi.org/10.1016/j.ssresearch.2018.08.003
Hogerbrugge, Martijn J.A. and Komter, Aafke. E. (2012). Solidarity and Ambivalence: Comparing Two Perspectives on Intergenerational Relations Using Longitudinal Panel Data, The Journals of Gerontology, 67B (3), 372-383. https://doi.org/10.1093/geronb/gbr157
Heyman, Anna (2018). What do Young Adult Carers Learn Through Supporting Family Members? Extending the Affirmation Model. Disability & Society, 33(8), 1191-1211. https://doi.org/10.1080/09687599.2018.1481014
Hwang, Woosang; Kim, Jeung Hyun; Cheng, Kent Jason; Brown, Maria T. and Silverstein, Merril (2021). Reciprocal Associations Between Affectual, Associational, and Normative Solidarity with Parents During Children’s Early to Established Adulthood. Family Process, 61(3), 1287-1304. https://doi.org/10.1111/famp.12725
Hwang, Woosang; Kim, Jeung Hyun; Brown, Maria T. and Silverstein, Merril (2023). Intergenerational Solidarity of Adult Children with Parents from Emerging to Established Adulthood. Journal of Family Psychology, 37(6), 853-863. https://doi.org/10.1037/fam0001087
Johnson, Nan E. and Stokes, C. Shannon (2011). Family Size in Successive Generations: The Effects of Birth Order, Intergenerational Change in Lifestyle, and Familial Satisfaction. Demography, 13, 175-187. https://doi.org/10.2307/2060799
Justin, Pauline; Dorard, Géraldine; Vioulac, Christel; Leu, Agnès and Untas, Aurélie (2021). What do French School Staff Know About Young Carers? A Qualitative Study About Their Perceptions. Psychology in the Schools, 58(8), 1531-1544. https://doi.org/10.1002/pits.22510
Kallander, Ellen Katrine; Weimand, Bente; Ruud, Torleif; Becker, Saul; Van Roy, Betty and Hanssen-Bauer, Ketil (2018). Outcomes for children who care for a parent with a severe illness or substance abuse. Child & Youth Services, 39(4), 228-249. https://doi.org/10.1080/0145935X.2018.1491302
Kallander, Ellen Katrine; Weimand, Bente M.; Becker, Saul; Van Roy, Betty; Hanssen‐Bauer, Ketil; Stavnes, Kristin; Faugli, Anne; Kufås, Elin and Ruud, Torleif (2018). Children with Ill Parents: Extent and Nature of Caring Activities. Scandinavian Journal of Caring Sciences, 32(2), 793-804. https://doi.org/10.1111/scs.12510
Kavanaugh, Melinda S. (2014). Children and Adolescents Providing Care to a Parent with Huntington’s Disease: Disease Symptoms, Caregiving Tasks and Young Carer Well-Being. Child & Youth Care Forum, 43, 675-690. https://doi.org/10.1007/s10566-014-9258-x
Kavanaugh, Melinda; Henning, Fiona and Mochan, Amanda (2021). Young carers and ALS/MND: Exploratory Data from Families in South Africa. Vulnerable Children and Youth Studies, 16(2), 123-133. https://doi.org/10.1080/17450128.2020.1837409
Kavanaugh, Melinda S.; Noh, Hyunjin, and Studer, Lori L. (2015). “It’d Be Nice If Someone Asked Me How I Was Doing. Like, ‘Cause I Will Have An Answer”: Exploring Support Needs of Young Carers of a Parent with Huntington’s Disease. Vulnerable Children and Youth Studies, 10(1), 12-25. https://doi.org/10.1080/17450128.2014.980370
Kavanaugh, Melinda; Stamatopoulos, Vivian; Cohen, Donna and Zhang, Lixia (2016). Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States. Adolescent Research Review, 1(1), 29-49. https://doi.org/10.1007/s40894-015-0015-7
Leu, Agnes; Frech, Marion and Jung, Christoph (2018). Young carers and Young Adult Carers in Switzerland: Caring Roles, Ways into Care and the Meaning of Communication. Health & Social Care in the Community, 26(6), 925-934. https://doi.org/10.1111/hsc.12622
Leu, Agnes; Guggiari, Esther; Phelps, David; Magnusson, Lennart; Nap, Henk H.; Hoefman, René; Lewis, Fiona; Santini, Sara; Socci, Marco and Boccaletti, Lucia (2021). Cross-National Analysis of Legislation, Policy and Service Frameworks for Adolescent Young Carers in Europe. Journal of Youth Studies, 121. https://doi.org/10.1080/13676261.2021.1948514
Levine, Carol; Hunt, Gail G.; Halper, Deborah; Hart, Andrea Y.; Lautz, Jessica and Gould, David A. (2005). Young Adult Caregivers: A First Look at an Unstudied Population. American Journal of Public Health, 95(11), 2071-2075. https://doi.org/10.2105/AJPH.2005.067702
López López, María Teresa; González Hincapié, Viviana and Sánchez Fuentes, Antonio Jesús (2015). Personas mayores y solidaridad intergeneracional en la familia. Editorial Cinca. Madrid.
Lowenstein, Ariela and Daatland, Svein Olav (2006). Filial norms and family support in a comparative cross-national context: evidence from the OASIS study. Ageing and Society, 26, 203-223. https://doi.org/10.1017/S0144686X05004502
Majeed, Muhammad Hassan; Khokhar, Muhammad Abbas; Abid, Maryam; Raza, Awais; Qaisar, Muhammad Nawaz; Ali, Ali Ahsan and Waqas, Ahmed (2018). Frequency and Correlates of Symptoms of Anxiety and Depression Among Young Caregivers of Cancer Patients: A Pilot Study. BMC Research Notes, 11(1), 1-6. https://doi.org/10.1186/s13104-018-3740-8
Matzka, Martin and Nagl‐Cupal, Martin (2020). Psychosocial Resources Contributing to Resilience in Austrian Young Carers—A Study Using Photo Novella. Research in Nursing & Health, 43(6), 629-639. https://doi.org/10.1002/nur.22085
Mauss, Marcel (2002). The gift: The form and reason for exchange in archaic societies. Abingdon: Rutledge.
McDougall, Elizabeth; O'Connor, Moira and Howell, Joel (2018). “Something That Happens at Home and Stays at Home”: An Exploration of the Lived Experience of Young Carers in Western Australia. Health & Social Care in the Community, 26(4), 572-580. https://doi.org/10.1111/hsc.12547
Meil, Gerardo (2011). Individualization and Family Solidarity. Social Studies Collection No. 32. Welfare Projects. “La Caixa” Madrid.
Metzing, Sabine; Ostermann, Thomas; Robens, Sylvia and Galatsch, Michael (2020). The Prevalence of Young Carers–A Standardised Survey Amongst School Students (KiFam‐study). Scandinavian Journal of Caring Sciences, 34(2), 501-513. https://doi.org/10.1111/scs.12754
Moore, Tim and McArthur, Morag (2007). We’re All in it Together: Supporting Young Carers and Their Families in Australia. Health & Social Care in the Community, 15(6), 561-568. https://doi.org/10.1111/j.1365-2524.2007.00719.x
National Alliance of Caregivers and United Hospital Foundation (2005). Young Caregivers in the U.S.
Nickels, Margaret; Siskowski, Connie; Lebron, Cynthia N. and Belkowitz, Julia (2018). Medication Administration by Caregiving Youth: An Inside Look at How Adolescents Manage Medications for Family Members. Journal of Adolescence, 69, 33-43. https://doi.org/10.1016/j.adolescence.2018.09.001
Peterson, Brittany Lamar (2017). Thematic Analysis/Interpretive Thematic Analysis. The International Encyclopaedia of Communication Research Methods, 1-9. https://doi.org/10.1002/9781118901731.iecrm0249
Phelps, Daniel (2021). What Changes for Young Carers? A Qualitative Evaluation of The Impact of Dedicated Support Provision for Young Carers. Child and Adolescent Social Work Journal, 38(5), 547-558. https://doi.org/10.1007/s10560-021-00790-9
Roling, Maren; Falkson, Sandra; Hellmers, Claudia and Metzing, Sabine (2020). Early Caregiving Experiences and the Impact on Transition into Adulthood and Further Life: A Literature Review. Scandinavian Journal of Caring Sciences, 34(3), 539-551. https://doi.org/10.1111/scs.12757
Rose, Helena D. and Cohen, Keren (2010). The Experiences of Young Carers: A Meta-Synthesis of Qualitative Findings. Journal of Youth Studies, 13(4), 473-487. https://doi.org/10.1080/13676261003801739
Sarasa, Sebastián and Billingsley, Sunnee (2008). Personal and Household Care Giving for Adult Children to Parents and Social Stratification. In Saraceno, C. (Ed.) Families, Aging and Social Policy, pp. 123-146. Edward & Elgar.
Schans, Djamila, and Komter, Aafke (2010). Ethnic Differences in Intergenerational Solidarity in The Netherlands. Journal of Aging Studies, 24(3), 194-203. https://doi.org/10.1016/j.jaging.2008.10.007
Smyth, Ciara; Blaxland, Megan and Cass, Bettina (2011). “So That's How I Found Out I Was a Young Carer and That I Actually Had Been a Carer Most Of My Life”. Identifying and Supporting Hidden Young Carers. Journal of Youth Studies, 14(2), 145-160. https://doi.org/10.1080/13676261.2010.506524
Stamatopoulos, Vivian (2015). One Million and Counting: The Hidden Army of Young Carers in Canada. Journal of Youth Studies, 18(6), 809-822. https://doi.org/10.1080/13676261.2014.992329
Stamatopoulos, Vivian (2016). Supporting Young Carers: A Qualitative Review of Young Carer Services in Canada. International Journal of Adolescence and Youth, 21(2), 178-194. https://doi.org/10.1080/02673843.2015.1061568
Stamatopoulos, Vivian (2018). The Young Carer Penalty: Exploring the Costs of Caregiving Among aSample of Canadian Youth. Child & Youth Services, 39(2-3), 180-205. https://doi.org/10.1080/0145935X.2018.1491303
Starrels, Marjorie E.; Ingersoll-Dayton, Berit; Neal, Margaret B. and Yamada, Hiroko (1995). Intergenerational Solidarity and the Workplace: Employees’ Caregiving for Their Parents. Journal of Marriage and Family, 57, 751-762. https://doi.org/10.2307/353929
Steinbach, Anja (2008). Intergenerational Solidarity and Ambivalence: Types of Relationships in German Families. Journal of Comparative Family Studies 39(1), 115-127. https://10.3138/jcfs.39.1.115
Szinovacz, Maximiliane E. (1998). Grandparents Today: A Demographic Profile. The Gerontologist, 38(1), 37–52. https://doi.org/10.1093/geront/38.1.37
Van der Werf, Hinke M.; Luttik, Marie Louise A.; Francke, Anneke L.; Roodbol, Petrie F. and Paans, Wolter (2019). Students Growing Up with a Chronically Ill Family Member; a Survey on Experienced Consequences, Background Characteristics, and Risk Factors. BMC Public Health, 19(1), 1-8. https://doi.org/10.1186/s12889-019-7834-6
Wayman, Sarah; Raws, Phil and Leadbitter, Helen (2016). There’s Nobody There–No One Who Can Actually Help? The Challenges of Estimating the Number of Young Carers and Knowing How to Meet Their Needs. London: The Children’s Society.
Wepf, Hanna; Joseph, Stephen and Leu, Agnes (2021). Benefit finding moderates the relationship between young carer experiences and mental well-being. Psychology & Health, 37(10), 1270-1286. https://doi.org/10.1080/08870446.2021.1941961
White, Lynn (1994). Growing Up with Single Parents and Stepparents: Long-Term Effects on Family Solidarity. Journal of Marriage and Family, 56, 935-948. https://doi.org/10.2307/353604
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